Ella Balasa
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Patient Expert, Speaker, Consultant
Antimicrobial resistance survivors: calling the world to action
How I Made Patient Advocacy and Health Leadership My Career
Patient Engagement Needs More Benefit Analysis, Fewer Theoretical Conversations
Publications and Peer Reviewed Plain Language Summaries
My Journey With Cystic Fibrosis
The battle inside my lungs: Living with cystic fibrosis and AMR
What makes a rare disease patient advocate?
The Keys to Good Relationships With Your Care Teams
Digital health increases pharma’s engagement with patients
Patients, providers and pharma: Working together to address the affordability crisis
My Experience with Phage Therapy: 3 Years Later
Cystic fibrosis learning network telehealth innovation lab during the COVID-19 pandemic
A New Alternative for Pancreatic Enzyme Replacement Therapy (PERT)
Eloxx Pharmaceuticals Nonsense Target Therapy
New Treatment for Lung Transplant Recipients Experiencing Chronic Rejection
Translate Bio Recruiting Class 1 and Nonsense Mutation Patients
A blog dedicated to the introspective thoughts from triumphs and hardship of a life with cystic fibrosis
Sharing about the life hurdles associated with CF and the strength to overcome
Articles pertaining to my life with CF, my advocacy work, and tips for other patients
Life & Work with Ella Balasa of St Petersburg
Medicines save lives but not when they stop working
Patient Turned Advocate Shares Insights, Experiences with Clinical Trials
The Antimicrobial Resistance Pandemic: Breaking the Silence
Transforming Patient Stories into Action with Ella Balasa
The Portrait Project
Tight-knit patient communities open their doors to pharma
Bacterial Infections in People With Cystic Fibrosis: A Race Against Time
Medical Hero Spotlight: Cystic Fibrosis Advocate & Patient Engagement Consultant
In the War on Bacteria, It’s Time to Call in the Phages
3 reasons to engage patients in clinical-trial protocol design and planning
Pharmaceutical, diagnostics companies look to patients to help fight antibiotic resistance
Ep 1 | Stop Designing Clinical Trials without Us
Trials with Maya Z
WHO AMR Survivors Taskforce
Panel - Highlighting other types of (often non-academic) patient partnerships
Patient Partner Ella Balasa: Creating Mutual Benefit for Industry and Patients
Transforming Clinical Data Collection by Putting Patients First
American Journal of Healthcare Strategy
Finding a Second Wind: Cystic Fibrosis
How can industry-sponsored research & publicly-funded research be designed to better serve patients?
Video
Advocacy Anywhere: Communication With Your Doctor
Accelerate clinical data innovation
Patient Engagement Taskforce Member
Taskforce of Antimicrobial Resistance Survivors
Advisory Panel on Rare Disease Member
2023 Patient Leadership Council Member
Patient Advisor
Patient Editorial Board Member
Conversations with Patients
Passionate individuals who use their voice to tell stories, create change, and inspire others living with chronic disease.
Getting to Ground Truth – answering healthcare workforce challenges with new virtual models of care
The Value of the Patient Experience Presentation
White Paper: A Patient-Centered Research Agenda Advancing Personalized Medicine
