Ella Balasa
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Patient Advocate, Speaker, Consultant
What makes a rare disease patient advocate?
The Keys to Good Relationships With Your Care Teams
Digital health increases pharma’s engagement with patients
My Experience with Phage Therapy: 3 Years Later
Cystic fibrosis learning network telehealth innovation lab during the COVID-19 pandemic
Coming Full Circle: Reflections and Inspirations from a Cystic Fibrosis Patient Scientist Panel
Rare Entrepreneur Series
Airway Clearance Therapy in Cystic Fibrosis Patients Insights from a Clinician Providing Cystic Fibrosis Care
To Everyone's Surprise, COVID-19 Spared My Lungs
Antibiotic resistance, chronic disease, and covid-19—a triple threat
5 Ways to Self Advocate
A Patient and Physician Perspective
A New Alternative for Pancreatic Enzyme Replacement Therapy (PERT)
Eloxx Pharmaceuticals Nonsense Target Therapy
New Treatment for Lung Transplant Recipients Experiencing Chronic Rejection
Translate Bio Recruiting Class 1 and Nonsense Mutation Patients
A blog dedicated to the introspective thoughts from triumphs and hardship of a life with cystic fibrosis
Sharing about the life hurdles associated with CF and the strength to overcome
Articles pertaining to my life with CF, my advocacy work, and tips for other patients
3 reasons to engage patients in clinical-trial protocol design and planning
Pharmaceutical, diagnostics companies look to patients to help fight antibiotic resistance
"Living Longer, Better"
AMR patient story feature
Medidata Patient Advocates Discuss the Importance of Mental Health
ImagineWe Publishers
Scientists are recruiting phages, bacteria’s natural predators, as the antibiotic resistance crisis worsens.
Two Key Questions About Patient Experience in 2021
Bacteria-eating viruses could provide a route to stability in cystic fibrosis
Could bacteria-eating viruses be drafted to replace antibiotics?
Education and empowerment would provide more equal access to care
How Antibiotics Are Vital for People Living with CF
Perspectives on Patient-Focused Drug Development in Rare Disease
Antimicrobial stewardship: Communities in action
Personalize patient engagement by integrating your innovation and digital strategies
CF Patient Advocate and Artist to Advocate Award Winner
Patient-inclusion in clinical trial design
Phage Therapy: A Panel Discussion
Advocacy and the Legislative Landscape
Strengthening patient relationships authentically to enhance the therapeutic development process
Effectively articulating burden for future health technology assessments
Evaluating the Success of Decentralised Clinical Trials WEBINAR
2021 Young Adult Winner EveryLife Foundation
Patient Advisor
Patient Editorial Board Member
Conversations with Patients
Passionate individuals who use their voice to tell stories, create change, and inspire others living with chronic disease.
Getting to Ground Truth – answering healthcare workforce challenges with new virtual models of care
The Value of the Patient Experience Presentation
White Paper: A Patient-Centered Research Agenda Advancing Personalized Medicine
Tools for Remote Care Delivery
Lend my voice to convey needs of the CF community
Provide perspective on the feasibility in design of trials
