The Keys to Good Relationships With Your Care Teams

Digital health increases pharma’s engagement with patients

My Experience with Phage Therapy: 3 Years Later

Cystic fibrosis learning network telehealth innovation lab during the COVID-19 pandemic

Coming Full Circle: Reflections and Inspirations from a Cystic Fibrosis Patient Scientist Panel

Rare Entrepreneur Series

Airway Clearance Therapy in Cystic Fibrosis Patients Insights from a Clinician Providing Cystic Fibrosis Care

To Everyone's Surprise, COVID-19 Spared My Lungs

Antibiotic resistance, chronic disease, and covid-19—a triple threat

5 Ways to Self Advocate

A Patient and Physician Perspective

A Researcher-Patient's Plea for Broader Inclusion into Cystic Fibrosis Clinical Trials

A New Alternative for Pancreatic Enzyme Replacement Therapy (PERT)

Eloxx Pharmaceuticals Nonsense Target Therapy

New Treatment for Lung Transplant Recipients Experiencing Chronic Rejection

Translate Bio Recruiting Class 1 and Nonsense Mutation Patients

A blog dedicated to the introspective thoughts from triumphs and hardship of a life with cystic fibrosis

Sharing about the life hurdles associated with CF and the strength to overcome

Articles pertaining to my life with CF, my advocacy work, and tips for other patients

Medidata Patient Advocates Discuss the Importance of Mental Health

ImagineWe Publishers

Scientists are recruiting phages, bacteria’s natural predators, as the antibiotic resistance crisis worsens.

Two Key Questions About Patient Experience in 2021

Bacteria-eating viruses could provide a route to stability in cystic fibrosis

Could bacteria-eating viruses be drafted to replace antibiotics?

Education and empowerment would provide more equal access to care

How Antibiotics Are Vital for People Living with CF

Perspectives on Patient-Focused Drug Development in Rare Disease

Antimicrobial stewardship: Communities in action

Personalize patient engagement by integrating your innovation and digital strategies

CF Patient Advocate and Artist to Advocate Award Winner

Patient-inclusion in clinical trial design

Phage Therapy: A Panel Discussion

Advocacy and the Legislative Landscape

Strengthening patient relationships authentically to enhance the therapeutic development process

Effectively articulating burden for future health technology assessments

Evaluating the Success of Decentralised Clinical Trials WEBINAR

2021 Young Adult Winner EveryLife Foundation

Patient Advisor

Patient Editorial Board Member

Conversations with Patients

Passionate individuals who use their voice to tell stories, create change, and inspire others living with chronic disease.

Getting to Ground Truth – answering healthcare workforce challenges with new virtual models of care

The Value of the Patient Experience Presentation

White Paper: A Patient-Centered Research Agenda Advancing Personalized Medicine

Tools for Remote Care Delivery

Lend my voice to convey needs of the CF community

Provide perspective on the feasibility in design of trials