Ella Balasa
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Patient Advocate, Speaker, Consultant
My Journey With Cystic Fibrosis
The battle inside my lungs: Living with cystic fibrosis and AMR
What makes a rare disease patient advocate?
The Keys to Good Relationships With Your Care Teams
Digital health increases pharma’s engagement with patients
Patients, providers and pharma: Working together to address the affordability crisis
My Experience with Phage Therapy: 3 Years Later
Cystic fibrosis learning network telehealth innovation lab during the COVID-19 pandemic
Coming Full Circle: Reflections and Inspirations from a Cystic Fibrosis Patient Scientist Panel
Rare Entrepreneur Series
Airway Clearance Therapy in Cystic Fibrosis Patients Insights from a Clinician Providing Cystic Fibrosis Care
To Everyone's Surprise, COVID-19 Spared My Lungs
A New Alternative for Pancreatic Enzyme Replacement Therapy (PERT)
Eloxx Pharmaceuticals Nonsense Target Therapy
New Treatment for Lung Transplant Recipients Experiencing Chronic Rejection
Translate Bio Recruiting Class 1 and Nonsense Mutation Patients
A blog dedicated to the introspective thoughts from triumphs and hardship of a life with cystic fibrosis
Sharing about the life hurdles associated with CF and the strength to overcome
Articles pertaining to my life with CF, my advocacy work, and tips for other patients
Bacterial Infections in People With Cystic Fibrosis: A Race Against Time
Medical Hero Spotlight: Cystic Fibrosis Advocate & Patient Engagement Consultant
In the War on Bacteria, It’s Time to Call in the Phages
3 reasons to engage patients in clinical-trial protocol design and planning
Pharmaceutical, diagnostics companies look to patients to help fight antibiotic resistance
"Living Longer, Better"
AMR patient story feature
Medidata Patient Advocates Discuss the Importance of Mental Health
To Kill a Superbug
Two Key Questions About Patient Experience in 2021
Bacteria-eating viruses could provide a route to stability in cystic fibrosis
Could bacteria-eating viruses be drafted to replace antibiotics?
4 Realities of Living With Advanced Symptoms of a Rare Disease
Living with Cystic Fibrosis
5 Realities About Living with Advanced Lung Disease
Episode 12: Ella Balasa - Cystic Fibrosis
Contagious Conversations: Creatively Combatting AMR
Drug Supply Shortage Emergency + PASTEUR Act
Losing your Breath, Gaining your Resilience
How Antibiotics Are Vital for People Living with CF
Perspectives on Patient-Focused Drug Development in Rare Disease
Antimicrobial stewardship: Communities in action
Personalize patient engagement by integrating your innovation and digital strategies
CF Patient Advocate and Artist to Advocate Award Winner
Patient Engagement Taskforce Member
Taskforce of Antimicrobial Resistance Survivors
Advisory Panel on Rare Disease Member
2023 Patient Leadership Council Member
Patient Advisor
Patient Editorial Board Member
Conversations with Patients
Passionate individuals who use their voice to tell stories, create change, and inspire others living with chronic disease.
Getting to Ground Truth – answering healthcare workforce challenges with new virtual models of care
The Value of the Patient Experience Presentation
White Paper: A Patient-Centered Research Agenda Advancing Personalized Medicine