How I Made Patient Advocacy and Health Leadership My Career

Patient Engagement Needs More Benefit Analysis, Fewer Theoretical Conversations

Publications and Peer Reviewed Plain Language Summaries

My Journey With Cystic Fibrosis

The battle inside my lungs: Living with cystic fibrosis and AMR

What makes a rare disease patient advocate?

The Keys to Good Relationships With Your Care Teams

Digital health increases pharma’s engagement with patients

Patients, providers and pharma: Working together to address the affordability crisis

My Experience with Phage Therapy: 3 Years Later

Cystic fibrosis learning network telehealth innovation lab during the COVID-19 pandemic

Coming Full Circle: Reflections and Inspirations from a Cystic Fibrosis Patient Scientist Panel