My Experience with Phage Therapy: 3 Years Later

Cystic fibrosis learning network telehealth innovation lab during the COVID-19 pandemic

Coming Full Circle: Reflections and Inspirations from a Cystic Fibrosis Patient Scientist Panel

Rare Entrepreneur Series

Airway Clearance Therapy in Cystic Fibrosis Patients Insights from a Clinician Providing Cystic Fibrosis Care

To Everyone's Surprise, COVID-19 Spared My Lungs

Antibiotic resistance, chronic disease, and covid-19—a triple threat

5 Ways to Self Advocate

A Patient and Physician Perspective

A Researcher-Patient's Plea for Broader Inclusion into Cystic Fibrosis Clinical Trials

One number keeps me from taking part in cystic fibrosis trials

My phage therapy experience

A New Alternative for Pancreatic Enzyme Replacement Therapy (PERT)

Eloxx Pharmaceuticals Nonsense Target Therapy

New Treatment for Lung Transplant Recipients Experiencing Chronic Rejection

Translate Bio Recruiting Class 1 and Nonsense Mutation Patients

A blog dedicated to the introspective thoughts from triumphs and hardship of a life with cystic fibrosis

Sharing about the life hurdles associated with CF and the strength to overcome

Articles pertaining to my life with CF, my advocacy work, and tips for other patients

ImagineWe Publishers

Scientists are recruiting phages, bacteria’s natural predators, as the antibiotic resistance crisis worsens.

Two Key Questions About Patient Experience in 2021

Bacteria-eating viruses could provide a route to stability in cystic fibrosis

Could bacteria-eating viruses be drafted to replace antibiotics?

Education and empowerment would provide more equal access to care

Effectively articulating burden for future health technology assessments

Evaluating the Success of Decentralised Clinical Trials WEBINAR

2021 Young Adult Winner EveryLife Foundation

Guest with Dr. Moyez Jiwa

Meet a Partner: Ella Balasa

The Intersection of a Science Background and Patient Advocacy

eCystic Fibrosis Review Advocacy Chat

Antibiotics: What you need to know

Behind Diagnosis: Patient Series Guest

Episode 20: Antibiotic resistance

Advocacy Video

Advocacy Video

Patient Advisor

Patient Editorial Board Member

Conversations with Patients

The Value of the Patient Experience Presentation

White Paper: A Patient-Centered Research Agenda Advancing Personalized Medicine

Lend my voice to convey needs of the CF community

Program to improve the knowledge of CF infections

Passionate individuals who use their voice to tell stories, create change, and inspire others living with chronic disease.