Publications & Written Content
Patients, providers and pharma: Working together to address the affordability crisis
Cystic fibrosis learning network telehealth innovation lab during the COVID-19 pandemic
Coming Full Circle: Reflections and Inspirations from a Cystic Fibrosis Patient Scientist Panel
Airway Clearance Therapy in Cystic Fibrosis Patients Insights from a Clinician Providing Cystic Fibrosis Care
A blog dedicated to the introspective thoughts from triumphs and hardship of a life with cystic fibrosis
As Featured IN...
Pharmaceutical, diagnostics companies look to patients to help fight antibiotic resistance
How Antibiotics Are Vital for People Living with CF
Passionate individuals who use their voice to tell stories, create change, and inspire others living with chronic disease.
Getting to Ground Truth – answering healthcare workforce challenges with new virtual models of care
White Paper: A Patient-Centered Research Agenda Advancing Personalized Medicine