SpeakinG Engagements
A seasoned speaker both on stage and on screen with years of experience across a broad range of audiences from 1000+ person pharmaceutical teams, physicians, researchers, and congressional staff, to addressing and empowering patient communities at disease specific education and awareness meetings. I am available for keynote presentations, panels, webinars, educational workshops, podcasts and more.
Industry and clinical research focus:
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The mutual benefit of patient partnership for both patients and the healthcare industry
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Empowering patient communities to enhance clinical participation strategies
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Successful patient engagement for recruitment and retention in clinical research
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What must be done to better engage patients, enhance value, and build loyalty above-and-beyond the therapeutic relationship
Patient community focus:
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Avenues for rare disease advocacy
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Tools for strengthening patient/physician relationships
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Navigating a career and balancing health with a disability
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The hardships and triumphs of living with chronic illness and thriving in health uncertainty
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From patient to healthcare consulting - How to make patient advocacy your career
I am happy to craft custom presentations as well to suit a variety of audiences.
Click below to view previous speaking engagements.
As a published writer I have experience strategizing effective healthcare communications to both industry/scientific and patient audiences. In collaboration with industry partners,I create informational health content and op-eds on clinical trial criteria and patient involvement in research, author and review lay clinical trial summaries, and white paper development on clinical research topics.
I have the ability to interpret research materials and simplify health and research concepts for patient audiences creating social media communications through short form informational video and blog content. I have authored numerous blog columns sharing the complexities of life with a chronic illness and empowering patients and advocates alike on their disease journeys.
Deliverables:
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Thought leadership
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Disease educational article and video format materials
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Journal publication collaborations
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Lay clinical trial and research summaries
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Guest posts for advocacy websites
Publication creation and review
patient Engagement Advisor
My personal experience as a patient combined with my work in industry has allowed me to understand and develop successful methods of patient engagement. As an advisor, I'd love to help you find ways to incorporate the patient voice and feedback into your projects and foster meaningful patient connections. I have experience working with both for-profit and non-profit organizations, with a focus on fostering partnership between patients and biotechnology, pharma, digital health, and other healthcare startups.
To enhance the process of developing new products from discovery to commercialization, listening to patients, understanding needs, burdens to improve their quality of life is a necessity. By strategically incorporating patient insights, we can implement actionable changes that result in superior products, enhanced services, and high quality patient experiences and health outcomes.
I will always be a creative thinker, brainstorming partner, and sounding board for new initiatives.
Consulting Services:
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Innovative engagement strategies with patient advocacy groups, the communities they serve and internal industry stakeholders for virtual summit, webinar series, or online course
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Clinical trial protocol review and insights
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Collection, systematization, and insight generation of patient experience input
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Advisory boards/councils establishment and management
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Stakeholder engagement - patient networks and advocacy organizations for partnership/collaborations
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Disease community landscape analysis and patient journey mapping
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Speaker series and webinar development
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Patient education materials for trial recruitment and retention
Social Media Influencer
I have experience connecting with other patient advocates through social media and can leverage its use to bring a call to action and awareness for campaigns, initiatives, and educational content. I create high impact video content that addresses patient communities.
I manage Instagram content including documenting conference attendance, interviewing attendants, and posting highlight reels and stories to social media.
Deliverables:
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Creating Infographics
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Developing social media graphics and posts
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Customizing brand design
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Curating visually appealing and educational content