Being born with a rare and chronic lung disease called cystic fibrosis, over the years of many hospital stays, doctor appointments, and procedures, I've learned the value of being a patient advocate for my own health. I believe in the importance of engaging patient communities to be active participants in healthcare across the continuum by empowering and educating them to collaborate with researchers, physicians, and pharmaceutical companies to improve disease outcomes.
With my science background, I have become a professional patient voice in research contributing to clinical trial development, research prioritization and committees, developing patient engagement initiatives, sharing my personal healthcare perspectives on various platforms, and engaging with the research and industry community.
I describe CF as my greatest blessing yet most awful curse, as although it limits my life tremendously, it has shaped me to be the person I am.
How I Can Help You
Manage social channels, curate content and create graphics and logos for health information dissemination
I'm a strong speaker with experience spanning healthcare
conferences to education meetings speaking to industry, providers, and other patient advocates. Promoting collaboration to leverage change in healthcare with experience to back my key points and perspectives
Create thought leadership, opinion, and patient experience articles on topics from clinical trial criteria, lay summaries, to sharing the hardships and triumphs of my personal health and research journey
“Ella Balasa is a collaborative, compassionate, purpose-driven leader who is well-respected and recognized for her input in the pharmaceutical industry. Ella and I have collaborated on numerous efforts to incorporate patient perspective into drug development. In addition, I have seen Ella speak at events. She has a unique ability of sharing her experiences in a way that relates to an audience to drive progress and change. She is an incredible story teller and writer. Every time I interact with Ella, I am impressed by her solution-driven approach and ability to inspire action.”
— Lindsey Smith, Associate Director, Patient Engagement