a Patient expert And dynamic Partner
Being born with a rare and chronic lung disease called cystic fibrosis, over the years of many hospital stays, doctor appointments, and procedures, I've learned the value of being a patient advocate for my own health. I believe in the importance of engaging patient communities to be active participants in healthcare across the continuum by empowering and educating them to collaborate with researchers, physicians, and pharmaceutical companies to improve disease outcomes.
With my science background, I have become an expert patient voice contributing to clinical trial development, research committees, developing patient engagement initiatives for biopharma, optimizing digital health platforms, and communicating with diverse stakeholders to deliver valuable patient insights to organizations to advance research and health.
My speaking experience spans across healthcare conferences to patient education meetings and keynotes addressing industry, providers, and other patient communities while promoting collaboration to leverage meaningful change in healthcare relying on my past research and personal experience to back my points and perspectives
Creation of thought leadership, patient experience articles, and patient facing materials including lay research summaries. Topics span clinical trial education, patient engagement and trial recruitment strategies, optimizing communications between patients sites and sponsors, and more
Lead development and execution of programs and engagement strategies to inform and serve patients supporting disease awareness initiatives, setting up advisory boards, patient speaker engagements and clinical trial planning and communications
CLients
